Wednesday, September 9, 2009

Just an Update

I haven't really been on here much and I apologize. I have recieved a few emails asking "What's going on"? and I just wanted to post an update really quick.

Kahlai has (AGAIN) developed a horrible allergic infection to what we are pretty sure are mosquito bites! The pics are gross so I will spare you. I took him to the ER on Sunday where they transported him to St. Joes. We stayed there over night and thankfully got to come home. I have to take him back tot he doctor now becuase his legs look like the infection is spreading up his leg. I will let you know.

Also, we are scheduled for another monitoring stay TOMORROW! It will be hard to keep him in the room and entertained, but it will be so nice to see how his little brain is doing. He has jumped through hoops in the past 8-9 months and I just admire the courage and strength this little boy has. I am certain that my son is here on this Earth to teach me the biggest lesson on LOVE.

So I will keep you updated. We are planning on doing a little video posting with my new webcam that I have to use for one of my online classes. Kahlai LLOOOOOOVES to watch himself on the videos. Watching and repeating himself and laughing at his own jokes has become his new thing.. lol. OH YES.. and he has learned to use the computer! He sits next to me sometimes while I do homework and I let him watch the Lightening McQueen and Mater cartoons on You Tube... he knows how to press play and pause it if he needs to "tell me a seekwet" LOL.. OH I <3 THIS KID!

Monday, July 27, 2009

Kahlai is goona be 4!!!

Geez this is happening waaaay too fast!

I go to visit my dear friend Amyra the other day (who has been in the hospital for a week now poor thing) and realized that it was the four year anniversary to when I was admitted into that SAME hospital to be prepped to have my son. It really took me back.. really? FOUR YEARS? Where did it go? Did I enjoy them? What am I doing? Time is flying and I feel like I'm standing still... waiting for the big day.. What DAY?

Last weekend we had his party and for the first time.. it wasn't this big ordeal where I almost crashed as the last person left the house... lol. No seriously.. I don't know why in the past three years I have felt like my son has needed a formal ball (kid style) for a birthday party... ridiculous- but it was what I felt probably made up for something I do not wish to go into detail about as his dad prints these blogs out and tells me he will use them in court against me.. it never seems as though I say the right things.. but I just don't care anymore.. doesn't matter.. it's my blog and I use this to keep you all informed of what is going on with Kahlai and I so PRINT THIS! Ha ha ;)

So anyways, today is the reason why I wanted to blog again. I know it's been a while.. and now you can understand why.

We went to visit my friend in the hospital again and Kahlai was SUCH a good boy. He used all his knowledge about being in a hospital to be very helpful to her.. no seriousy. He taught her how to use the buttons to operate her bed.. (not the ones on the handles.. the master controls on the bottom lol.) Then he helped the nurse change her linens and stacked up all the stuffed animals people had gotten her and told them all to be nice when she got out of the shower. Last time we went to visit Amyra, it was just after his party and he got a keyboard from his grandma. He practiced a song that he wanted to go sing to Amyra and b4 I could finish mopping the floor he was loading the keyboard into the car in the garage... So sweet. On our way to see her this weekend he bought her a Disney Princess bubble set and then today opened it up for her and played with it... spilled bubble solution all over the floor and ate part of her lunch "for her". He gave her one of his capri-suns and then asked for it back b/c he was "firsty". Did the same with some fruit snacks and ate them while she was in the shower lol. He told her it would be alright and then as we were leaving he said that we should go get her and take her to our house so she can be happy. I love my son and am so glad to hear these sweet words come out of his mouth and hear the kindness, compassion and care that he is showing more and more every day.

So then we get home and Kahlai always likes to spend some quality time with "Nana". So they went upstairs and I just knew by the look on her face that the sweetness coulnd't have lasted more than 5 minutes up there... my poor mom.. Kahlai always seems to break something of hers in a flash... seriously.. A FLASH and then... spends the rest of the time trying to make you smile and be happy after you are sad that your nice things are now ruined. lol

Just a part of having kids... no wait.. I only have one... and one is obviously enough! lol

All in all.. we are well. Kahlai is doing good. Still having seizures and we will be going into the BNI for monitoring in September so I will keep you updated.

OH! and I have my own website now... tell me what you think!

Thursday, May 28, 2009

Half Way There

I haven't blogged in a while but wanted to give an update to those who get on here to check how we are doing. Kahlai has been doing much better. Since the last adjustment to his meds, he has not shown many signs of seizing during the day. He is still seizing at night, but now there is nothing I can do about it until I can get his dad to agree to add a medication only at night to stop the night time seizures... or get the court's approval to make the call myself.

THis last month has been a wild ride. I graduated with two degrees as an honors graduate with high distinction and Phi Theta Kappa. Patrice sent me on a week vacation to Newport Beach with my best friend and I remembered what being a woman without stress was like. (wow). Came home with fresh ideas of how to handle certain stressors and so far so good.

I had to take an incomplete on 3 classes in order to survive last semester. They let me walk with the degree anyways.... but I have a bit more work to do still.

Next semester I am off to ASU... to their school of Design. I am praying that some scholarships line into place.. crossing my fingers, praying and more praying!

I'll try to do better about keeping this updated....

Saturday, April 25, 2009

It must be in the plan for us.

So I haven't been blogging much because I have been really trying hard to stay positive and be productive with all that we have had going on. After we came home from the hospital week before last, I had to play catch up. The good news is that Kahlai isn't going to be put on meds for being three. (eh-hem).

He IS hyper... but we took a pill from mid day and moved it to the evening and WHOA what a difference that made!

He has his moments... but in the past week he has been such a joy to be with and we have shared so many belly laughs... it feels good to have my boy back.

Kahlai is a comedian... no really.. he is. He has begun what I think will be lifetime of making people laugh. He has created his own knock knock jokes.. something you have to hear and I will try to get a video and post it soon.

He makes me smile... and often remember that days are short and lifetimes fly by if you can't stop and share the joy with those who are most meaningful in your life.

All that said... those times have been conveniently created for us.... days upon days sitting in a hospital room... a choice, to either stare at the walls, a tv, or we could finger paint, make a fort on the bed and "hide" from the nurses, sing silly songs, make up dances, decorate the room with coloring pages and call the nurse in for more juice, cups, ice, sheets, tape, gauze wrap, stickers... bed pans and a pair of scissors cuz we have an idea for a craft! lol.

On Tuesday, I went to class and when I came home, Kahlai had what looked to be mosquito bite. Kahlai is somewhat allergic to mosquitoes and swells up pretty good when he gets one... this time it was on his leg. It was Kevin's night to have him so I had him prop his leg up, put a bandage over it, cool compresses and some after bite. No fever.

I dropped him off to his dad. Told him what was going on and by 10pm Kevin took him to urgent care because the swelling had gotten worse and had a low grade fever of 99.5. He was still walking on it, but seemed not to really want to come home with mommy... it's always hard to say no... but it wasn't my night so I went home.

The next day Kevin brought him back to me just after noon. Within a few hours I had seen it swell more, and start to get dark so I took I'm back in to the urgent care ER in Gilbert.

There, they started him an IV and took us by ambulance to a hospital where we were admitted for 3 1/2 days.

What probably started as a bug bite, had become seriously infected overnight and or he has MRSA? The docs were never sure, didn't get enough junk on the swab to culture for a diagnosis, but with IV meds, prayer and time, he is getting better and was discharged today.

I can't tell you how I loathe being in the hospital.. this one had no wireless Internet so I struggled to get a scholarship app in (thank you mom for dedicated the entire day to helping me get it in.. you are an angel!). My homework has been waiting for SO I will post this and get right to it.

Just wanted to update everyone with what was going on.. thank you so much for your support and please please please pray for this scholarship! It is worth enough to cover the majority of my tuition! (crossing my fingers).

Tuesday, April 7, 2009

Here it is.. Finally

So we came in for a "routine" monitoring Monday morning... for what was supposed to be a 24 hour visit. I refused to pack anything for this trip because I did not want to encourage nor entertain the idea of staying here...

I should have packed.

I must have gotten home and comfortable and forgotten what this place is like... how short the oppertunity to talk to the docs are and NEVER knew what is was like to have a NOT SICK child in the hospital... this is special.

So we are here trying to record him having some seizure activity. Good news is he is not having them very often... so that means we have had to stay longer so that we can catch a few different kinds..

It's like the opposite of why we were here last time...

We come in while he is fine...

We have to stay because he is better...

What the Heck? lol...

So he was hooked up to video and EEg monitoring... I told him that they are making a movie about him... and that he is the star!

He wants to go home, but I think he is enjoying charming all the nurses when they come in.. He has made up a few original knock-knock jokes and makes me crack up sometimes... my favorite is his ice cream soda knock knock joke

Today they said that Kahlai probably has ADHD..and want to put him on riddlin (or however you spell it).

What are your thoughts....? Im not making a decision on meds and am going to try to decrease his energy level with diet first.

I am going to take my collaberative entries and opinions and I've asked the nutritionist to come talk to me about starting a diet..

Amy, Sorry I couldn't call you back or take your call.. Kahlai has been a handfull. But I listened to everything you said and I thank you...

My mom came and helped me with Kahlai so I could shower and blog really quick... he was giving her a run for her money that I ended up having to save it and post an update a little late so sorry...

So here is day three.. We are told we can go home today. They didn' get what they wanted but we are going home anyway. YEEESSSS! Poor Kahlai is ready to be home and I am tired of sitting here telling him to be still and quiet...

He just got taken off the monitoring and Mickey and Minnie Mouse are going to be down the hall in 10 minutes! Kahlai has not been eating well so as I type I am telling him that if he eats we can go see them... its not working.. ;(

So we are waiting for the Pshychiatrist to get here so that we can go home. We are packed up... and ready to go.

So far this is what the epileptologist said:

His brain activity looks GREAT.. he is having long spans of normal brain activity when before he wasn't at all.

We are going to try altering his meds to try and provide him more protection against seizures while he sleeps.

and the usual.... follow up follow up... follow up.

Monday, March 23, 2009

So I think I have officially reached the neck of the bottle

I haven't blogged in a while because I have been extremly busy... Kahlai is doing better with his seizures... we are sick right now so he is having more than he has had in the past few weeks but other than that we have mainly been dealing with the side effects to the meds.

On more important news...

My poor friend Michelle is back in the hospital with her boy David for what might be his 28th surgery on his brain!! Please keep her in your prayers as they need as many prayers as possible right now. CAN YOU IMAGINE?

She also has a blog page. I'll ask her is I can share through mine.

Monday, March 2, 2009

From a Friend.. and I LOVE IT!! THANKS!


also he did the debate with McCain and Obama.
You will enjoy the new insights that Rick Warren has, with his wife
having cancer and him having 'wealth' from the book sales. This is an
absolutely incredible short interview with Rick Warren,

'Purpose Driven Life ' author and pastor of Saddleback Church in
. In the interview by Paul Bradshaw with Rick Warren, Rick said:

People ask me, What is the purpose of life? And I respond: In a
life is preparation for eternity. We were not made to last forever, and
wants us to be with Him in Heaven.

One day my heart is going to stop, and that will be the end of my
body-- but
not the end of me. I may live 60 to 100 years on earth, but I am going
spend trillions of years in eternity. This is the warm-up act - the
rehearsal. God wants us to practice on earth what we will do forever
eternity. We were made by God and for God, and until you figure that
life isn't going to make sense.

Life is a series of problems: Either you are in one now, you're just
out of one, or you're getting ready to go into an other one.
The reason for this is that God is more interested in your character
your comfort.
God is more interested in making your life holy than He is in making
life happy. We can be reasonably happy here on earth, but that's not
goal of life. The goal is to grow in character, in Christ likeness.

This past year has been the greatest year of my life but also the
with my wife, Kay, getting cancer. I used to think that life was hills
valleys - you go through a dark time, then you go to the mountaintop,
and forth. I don't believe that anymore. Rather than life being hills
valleys, I believe that it's kind of like two rails on a railroad
track, and
at all times you have something good and something bad in your life.
matter how good things are in your life, there is always something bad
needs to be worked on. And no matter how bad things are in your life,
is always something good you can thank God for.
You can focus on your purposes, or you can focus on your problems.

If you focus on your problems, you're going into
self-centeredness,'which is
my problem, my issues, my pain.' But one of the easiest ways to get rid
pain is to get your focus off yourself and onto God and others.

We discovered quickly that in spite of the prayers of hundreds of
of people, God was not going to heal Kay or make it easy for her. It
been very difficult for her, and yet God has strengthened her
given her a ministry of helping other people, given her a testimony,
her closer to Him and to people. You have to learn to deal with both
good and the bad of life.

Actually, sometimes learning to deal with the good is harder. For
this past year, all of a sudden, when the book sold 15 million copies,
made me instantly very wealthy. It also brought a lot of notoriety that
had never had to deal with before. I don't think God gives you money
notoriety for your own ego or for you to live a life of ease . So I
began to
ask God what He wanted me to do with this money, notoriety and
influence. He
gave me two different passages that helped me decide what to do, II
Corinthians 9 and Psalm 72

First, in spite of all the money coming in, we would not change our
lifestyle one bit. We made no major purchases.

Second, about midway through last year, I stopped taking a salary from

Third, we set up foundations to fund an initiative we call The Peace
Plan to
plant churches, equip leaders, assist the poor, care for the sick, and
educate the next generation.

Fourth, I added up all that the church had paid me in the 24 years
since I
started the church, and I gave it all back. It was liberating to be
able to
serve God for free.

We need to ask ourselves: Am I going to live for possessions?

Am I going to be driven by pressures? Guilt? Bitterness? Materialism?
Or am
I going to be driven by God's purposes (for my life)?

When I get up in the morning, I sit on the side of my bed and say, God,
if I
don't get anything else done today, I want to know You more and love
better. God didn't put me on earth just to fulfill a to-do list. He's
interested in what I am than what I do. That's why we're called human
beings, not human doings.

Happy moments, PRAISE GOD.
Difficult moments, SEEK GOD.
Quiet moments, WORSHIP GOD.
Painful moments, TRUST GOD.
Every moment, THANK GOD.
God's Blessings on you today.