A smile goes a long way.

So I have to report the power of all of your prayers!!! Yesterday Kahlai woke up in a great mood. He smiled for really what seemed like the first time this week. Kahlai has really enjoyed having mommy and daddy around. It was so funny to see how things unfolded yesterday.

1. My sister sends me a text msg to tell me that she prayed for a miracle to happen today and she claimed an amazing day for Kahlai.

2. Amy stopped by and it was so good to have some girl talk and see Kahlai responding to a new familiar face around here... he has had a bit of an issue remembering people... but we are quite sure he remembers Amy.... after all.. he used to ask to go to her house... not to play with Trey and Tyson.. just to see Amy! lol. She was not emotionally attached to the diagnosis for kahlai. That was refreshing to be around... I think Kahlai responded to Amy's fresh vibes too.. she had such a calming energy that was soothing... and most importantly encouraging to me.

3. We got a new nurse and upon meeting her she said that she heard we were frusterated and told us that she was very anry.. and SHE WAS!

4. Kevin was feeding Kahlai his lunch and he started smiling and playing back with his dad today! i had to take a picture because I don't get to see that happy face very often these days.

5. My mom and sister came by and my sister brought Kahlai over an awesome care package of goodies.... a lightning McQueen blanket and pillow... McQueen Socks... and a new Thomas the train set... He loves both Thomas the train and Lightnin McQueen!!! He is seriously attached to this blanket now and for the first time is willing to keep his socks on! He was laughing with my mom and was just so excited to play.

6. Grandma and Grandpa Williams came over and brought a HUGE care package from Auntie Trice.. she is always very thoughtful and now with all of the stuff that my family and Kevin's family have brought for us to "survive" (lol)... we look as if we have officially moved in!

No seriously, we have food, clothes, an arrangement of toiletries now... drinks.... magazines... and a huge bag of toys for kahlai.... we are so LOVED! I can't tell you how good it feels to be so warmly supported by everyone.. even though I can't text back or return phone calls... or emails sometimes.... just to know that people read our blog and are following and supporting us the whole way really means more than you think... HONESTLY>

7. We met with our new epileptologist yesterday and we are SUCH FANS of his plan of action on Kahlai's condition!!!! YAY! WHOO HOO!!!!

So we are going to try and ween him off the Topomax... and find a theraputic dose of Depakote to start to control his seizures... without as many behavioral changes.

We are going to try to get a hold on his reaction to the meds and decrease his seizures. This doc said we can start inpatient and not have to stay in the hospital if it goes well.. we can continue as outpatient.. SO WE MIGHT GO HOME SOON! YAY!

In a hurry, he had us moved down to the neurology unit last night and today we start the monitoring for the first 24 hours. We may be able to go home tomorrow... we may not... just depends on how Kahlai is doing and what kind of seizure activity they are able to see in this next 24 hours. He is having 8 different episodes. 5 of them are confirmed seizures... the other three will will be able to confirm through the monitoring whether o rnot they are seizures or just a long lasting side effect to all of the meds he is taking. Yesterday he had 55 seizures..

i just want to let you all know that we appreciate you for keeping us in your prayers... THEY ARE WORKING!!! So keep up he good work!!

KAHLAI WILL BE HEALED IN JESUS NAME... it is up to us to claim that for him... I pray a recieving prayer... and every action that I have I make sure to claim it in a healing way.... many might think that it is hogwash... but i don't care... watch my son be healed and you will be a believer... I'm sure of it.

You all are wonderful. Kahlai can't have visitors while he is on the monitoring unit, but as soon as we know whether or not he will be in a room where he can have visitors, I will let you all know.

Also, he has RSV so it's important not to spread that around until he is rid of the illness... or risk of infecting anyone else.. POOR BABY!

So.. they are coming soo to hook him up to the machine... another 22 electrodes and a cool gauze hat!

I'll blog later today to let you know how that is going. We are pretty confined to logging and monitoring for the next 24 hours... so i will have brief moments to be able to blog...

To be continued....